Gray hair don’t care…

Author portrait, outdated before the print arrived

Sunday Blog 25 – 20th Feb 2022

I often thought that when I quit my job, (see this transition blog), I would stop dyeing my hair. I said that, but wasn’t sure I actually meant it. But I have found that the need to have a strong outward sign of the change within is too compelling. It’s official. Me and hair dye are through.

I thought about a range of options for how to achieve this, but as my hair is very short, I am opting for the no-cost solution of waiting for the dyed hair to grow out and be cut off. On Saturday I had my usual hair appointment. In the days leading up to it, I kept looking in the mirror, pulling my hair back, admiring the grey hair and how it looked against my skin and eyes. With my trademark impatience about how long things take, I expected my hair at the back at least to be almost entirely gray after my usual trim. It wasn’t. It’s actually more of a half-in-half sort of a look – almost like a baby bird moulting and getting new feathers.

I feel an impatience for this new gray hair, and am looking all around me to see all those fabulous women rocking their silver hair. Channeling their inner Elder as it were. I long to join their ranks.

Just before New Years I had an updated portrait done of me and my daughter, got a musician portrait for her and an author portrait for me (see image in the blog). I only picked up the hard copy yesterday.

“You’ll have to get a new author portrait done”, darling husband reminds me.

Nobody says transitions are easy or graceful.

Change? Or Profile of the struggle?

Sunday Blog 24 – 13th Feb 2022

If you don’t have a spare eight-plus hours, you might not find this Sunday Blog of interest. I worship podcasts, especially serial podcasts. I stumbled across The Trojan Horse Affair: a mystery in eight parts when listening to This American Life on Monday. They featured the first episode, and I was hooked. I had to listen to all 8.

There are many compelling aspects to this story, one being the two presenters’ relationship. Journalist Brian Reed meets doctor-turned journalism student Hamza Syed who pitches an idea to him the night before he starts journalism school. The story is from Syed’s hometown in Birmingham, England. Brian is hooked, and they team up to untangle the story of the so-called Trojan Horse letter. The two of them disappear down an investigative journalism rabbit hole for more than two years to create the series. The even end up in Perth, Australia.

The Trojan Horse Letter story itself begins in late 2013 when;

A strange letter appears on a city councillor’s desk in Birmingham, England, laying out an elaborate plot by Islamic extremists to infiltrate the city’s schools. The plot has a code name: Operation Trojan Horse. The story soon explodes in the news and kicks off a national panic. By the time it all dies down, the government has launched multiple investigations, beefed up the country’s counterterrorism policy, revamped schools and banned people from education for the rest of their lives.

https://www.nytimes.com/interactive/2022/podcasts/trojan-horse-affair.html

Finding out who wrote the letter is not a question that people in power want to be answered, as Brian and Hamza discover. The series starts with conversations with the supposed mastermind of Operation Trojan Horse, a man passionate about ensuring an equal opportunity for Muslim students in Birmingham. He joins a school council and turns the single-digit percentage of graduate students up to 70%. The Trojan Horse letter undoes all of this work and he is one of the several people we hear from who have never been allowed to re-engage in education again. The pain in their voices is palpable.

It’s Hamza’s question in the image of this post that made me stop, hand on heart, gasping at the enormity of this reflection. Rewinding and re-listening, capturing the question in an image, like a bug in amber for this post.

We often think that speaking up, bringing things to light will create change. Sometimes it does. And sometimes, it’s just another profile of the struggle. For me as an advocate, someone absolutely passionate about the power of the lived experience voice to drive change, it is sobering to remember that the lived experience voice is always and ever a David against the Goliath of power structures.

Grace Tame and Brittany Higgins have done so much in Australia to highlight the importance of addressing violence against women. The March4Justice in 2021 showed that the time is ripe for social change. And then in 2022, the ten-year plan to combat violence against women is launched, strategy-less into the nation. Baked in a University with no transparency about who got to have a say, it has no tangible actions or accountability mechanisms. A veiled, smudged-over mention that things are the same or worse in terms of the level of violence against women since the previous ten-year plan. It is such a threadbare and clearly meaningless political gesture – a smoke and mirror exercise to make it look as if something is changing when clearly it’s not. Will Grace and Brittany be able to create change or provide another profile of the struggle? It’s such a key question.

But I’m not nearly done with this podcast. It dug right into the nature of journalism, how it is important to be open-minded about a topic, to explore it without having a pre-conceived idea of answers to the question, the right and wrong of it all. And the core thread of Islamophobia that underpins the Trojan Letter thrums right through this podcast. I am ashamed to say I have not given enough thought to this issue. Neither had journalist Brian Reed because like me, he is white and mainstream. We just don’t have to think about the issue the way Hamza does. I cried as I listened to the recording of Muslim British Labor Politician Zahra Sultana’s speech – her voice breaks when she says “It’s to be treated by some as if I were an enemy of the country that I was born in as if I don’t belong.”

And I recognised myself in Brian. As the years and the episodes build up, Brian realises the impact of the story on Hamza is profoundly different to the impact of the story on him. He reflects on how his objective journalist view is another form of bystanding, and morally repugnant to Hamza. Brian asks himself;

I really do hope this podcast does spark the change that’s required. I know for me I am not the same person I was at the beginning of the week; before I listened. I have been enriched with new insights, challenged by fundamental questions and light has been thrown on blind spots I didn’t know I had. And that’s what good podcasts are all about.

Lost in The City

Sunday Blog 23 – 6th February 2022

I am one month into a three-month Transition which means I am once again commuting rather than driving to work. It is part of my shedding the golden handcuffs of the Executive Director role I held for seven years.

So it’s been seven years since I regularly commuted and I turned up at the station with my under-utilised train pass, with a backpack on and a light sense of reclaimed youth somehow. I lined up behind others who, in automatic pilot were tagging on for the $2 per day parking and swarming up the stairs to the station.

I tried to look like I knew what I was doing as there were two slightly different parking machines. On closer inspection, they both did the same thing and after a short tussle with reading, puzzling, and being self-conscious about holding up the queue I pressed the right buttons and was on my way up the stairs.

It was a combination of this and the backpack I think, that plunged me back into a 1990s memory in London when I was unusually attending a course in The City (as in 2.9 square kilometre finance district within the 1,519 square kilometres of Greater London). I no longer remember what the course was, but I vividly remember getting on a bus to travel the last leg of the journey after emerging from the Underground. This bus just serviced the City of London and everyone on the bus was in a sharp suit, with a clipped intensity of Very Important and Well Paid people travelling to work. It wasn’t like any other kind of bus in London so you couldn’t just use your normal pass to tag on. There was a weird machine with a maw-like dark entrance you had to throw the right gold coins into and no ticket was issued.

Of course, I couldn’t work out what to do, was scrabbling in my change purse, throwing coins at the machine, hearing the unexpressed but somehow audible (in a London kind of way) frustration of my fellow commuters held up by my fumbling. I sat down in shame, dressed in my charity shop trouser suit that was so obviously, and in every way different and inferior to the expensive, sharp suits around me. Everything in The City was about money and making money and I just didn’t fit.

Around this time I also remember having a night out with a group of people from I think Morgan Stanley Bank who I had somehow connected with due to the woman who lived in the middle floor flat. Because London.

Most people I hung out with worked in the museum sector like I did – we were civil servants and money was irrelevant and a little bit wrong. This smart group of young commercial banking people I had somehow ended up having drinks with had no trouble navigating the mysteries of buses in the City. I think we both looked down on each other and ended up having an argument about capitalist versus socialist ideals and I probably lost. My ignorance about money was pretty complete.

Around this time I found a book about money and spirituality, which I have long forgotten the title of, and began to try to untangle how I felt about money. I wanted to manage my finances a little better than I was, and was feeling the pinch of the reality that poverty is very over-rated. There were revelatory ideas such if you pay rent you pay it forever but if you are lucky enough to buy real estate you don’t have to pay that mortgage forever. I hadn’t ever borrowed much, but neither had I invested. Every job choice had been about an ideal or dream, rather than joining a lucrative profession.

Perhaps inspired by this book I bought a flat in a dodgy South Eastern suburb right when the bottom had fallen out of London’s real estate market. That proved to be the action that made my unexpected pregnancy about four years later much less of a path to ongoing poverty than it might have been.

I think I have remained somewhere between the extremes of this quote. Money as a sole arbiter of success is appalling, and there’s so much about income inequality and unaffordable housing that shows me that as a society we have currently got it wrong.

But me being able to pick up the tab for my own life is important and I constantly look for ways to be sensible and where possible, generous. I’m contemplating the wisdom of Elizabeth Gilbert insisting that we should not make our art pay our bills. Meanwhile a tender desire to make money from writing is emerging among my different thoughts about what happens next now that I have resigned from the day job…

Stopping for death

Sunday Blog 22 – 30th January 2022

Monday 24th Jan, in this last week of the longest January in human history, my Book Club friend Lencie died of cancer. I tossed up between this quote and “rage, rage against the dying of the light” because Lencie hoped against hope right up until the end that she would get better and go home.

As you may have read in last week’s blog, her oncologist said to her on Tuesday 11th January that her tumour markers were down and she had months left to live. That same evening someone from the Palliative Care Team informed her she would die that night. As she kept going for nearly two weeks, understandably she still had hope that she would get better. Especially when the oxygen pump she was by then hooked up to was increasing her sense of wellbeing, reducing her symptoms. This pump also precluded her from transferring to the hospice because they didn’t have this kind of pump. It wasn’t just static oxygen – it was a pump that was technically considered an intervention rather than a comfort measure. In all conversations back and forth about what treatment she wanted, Lencie’s option to transfer to hospice where the food was much better had been taken off the table.

I have been obsessively reading a new book by two doctors with about 1,000 research papers between them. They are passionate about reducing unnecessary care and the harm that it can cause. Called Hippocrasy – How doctors are betraying their oath, it makes a plea for fundamentally changing how we deliver medical and clinical care. Serendipitously I was up to the chapter on beginning and end of life at the same time as I was popping in and out of Lencie’s hospital room. watching from a carer’s perspective how we medicalise death and what it means at the end.

Doctors and nurses say they give dying patients much more aggressive treatments than they would want for themselves in the same situation. Terminally ill doctors spend less time getting treatments and less time in hospital than the people they once treated.

Hippocrasy, page 162

My own father died in October of 2020, and in this last week I have wondered, sometimes guiltily that I have thought so much more about Lencie’s death than I did about his. My father too felt he might go on a bit longer, but at nearly 95 with congestive heart failure, he probably had a hunch that was optimistic. He was frail as well. His life force had always been so strong, but it was starting to dim. Lencie on the other hand was only 56. She had a vitality and mobility that seemed at odds with her prognosis. Little wonder she was clinging on to some kind of hope.

Hippocrasy also says:

We need to divert the focus from avoiding death to ensuring a ‘good death’. A good death means one that’s accepted and comfortable, with conflicts resolved and according to personal preferences.

Hippocrasy, page 162

I’m really bloody sorry Lencie that your final meal was cornflakes and milk. If only we could have given you the cucumber sandwiches and high tea to go out on. We all got tangled up in the oncology versus palliative, in your false hope rather than reality. But that darn old death stopped for you anyway.

Rest easy Lence.

Lencie

Sunday Blog 21 – 23 January 2022

“No, not Lesley, it’s Lencie.”

Book Club, I’m trying to work it out now when it was, but I’m thinking 2006. We’re in Dymocks, Fremantle. The store is owned and run by a family, and the second son Clive is in our newly forming Book Club. I think it is about the third get-together. It is heaven. Each month Clive brings us actual books to look at and we squeal over them, get to touch them and then we decide on the one we will all read. A new member has joined – Lencie. We are a serious Book Club that reads every book and has detailed and sometimes heated discussions about what we thought about each one.

As I listen to her introduce herself, I think how often she must have had to explain the awkwardness of her birth name and how deftly and clearly she covered off on it. Lencie was a staunch Book Clubber from then until now. Some have come, some have gone but Lencie was committed. Clive alas left a long time ago and cut off our crack cocaine supply of new books to pore over for each Book Club.

I am almost positive it was her who articulated the standards for our Book Club. The title can’t be in bigger print than the author’s name, and raised lettering is usually to be avoided, especially if it’s gold. Over the decades we found this served us well.

Mind you, when we didn’t like a book, we would talk about that more than the ones we loved. And occasionally we have been blessed with the presence of the author who comes to debrief their book with us.

I remember the Book Club when Lencie announced she had found a lump on her breast. It wasn’t benign and she began the breast cancer treatment journey (how she hated that phrase – it’s really not a journey any of us would choose…) Those who have had the pleasure of knowing Lencie will agree she has the ability to articulate the difficult realities that others shy away from. She is direct and challenging while also curious and kind.

Thus my Book Club friend Lencie crossed over into my day job at the Health Consumers’ Council and she became a guest speaker at the December 2015 West Australian Clinical Senate. This is a gathering of engaged and caring health professionals who debate key topics. This one was called “The Patient will see you now – Thinking beyond accreditation to focus on the patient experience.” She and I were the only two non-clinical people on the day, but I knew Lencie would more than hold her own.

To quote from the final report:

Ms Wenden courageously delivered an enlightening account of her ‘roller coaster ride’ through the health system once diagnosed with breast cancer.

She described the health system as a big and at times impersonal beast – one in which it is often hard to feel seen and be heard. She shared that she often had excellent care, by excellent clinicians, and that the bad experiences related more to systemic than individual failures.

Highlighted throughout Lencie’s story was the lack of coordination across sites which included her file being lost in the system as she navigated treatment across 7 sites, none of which spoke to each other. The disconnect between hospitals GPs also impacted her care.

Additionally, complications were not addressed or picked up by staff and there were challenges with her ongoing medications.

Clinical Senate Report, December 2015, page 15

For “complications” read nightmares such as full-thickness radiation burns when her treatment was outsourced to a private clinic in the change-over when Fiona Stanley Hospital was being established. Everything that could go wrong with treatment always did with Lencie. At one point in her journey she posted an image that said “Fuck cancer, I survived the treatment!”

And then, around four years ago came the terminal diagnosis. The Lencie Bucket List was established, and as a member of Lencie’s chosen family, I joined in on a number of tasteful, fun and food-soaked outings.

Last Tuesday after a long-ish hospital admission she was told she wouldn’t last the day. She had also been told in the morning that her tumour markers were down and she could have 2-3 months left to go. It was a confusing, jarring experience for us around her, let alone for Lencie herself. Did she have 2-3 months or 24 hours? As it turns out, neither. She remains an oncology patient under palliative care, and the bumps and cracks between these teams were constantly evident. Her chosen family members and some family members too have been by her side, checking over and over again with the caring but somehow hamstrung treating team if the symptoms can’t be more relieved? She can’t be moved to the hospice so she has to stay on the cancer ward. They do their best, but it’s just a different way of caring.

I think back to her brave Clinical Senate presentation in 2015:

Lencie’s story identified the challenges clinicians also grapple with in relation to a large system, where consumers get lost and can feel like a number, not a person. She highlighted the many missed opportunities for better care through a lack of communication.

Clinical Senate Debate report, December 2015 page 16

Isn’t it a shame that not enough has changed between then and now? As I write she is still with us, and it’s so unclear if some of the comfort measures are actually prolonging the suffering. She is still here, but she’s no longer Lencie.

Rest easy dear Lencie. We will have an empty chair for you at our next Book Club meeting. It was your choice, The Man Who Mistook His Wife For A Hat and I was trying to comfort you a little in your last days reading it out loud to you. But you promptly fell fast asleep. You woke up eventually and said;

“That book is pretty dry isn’t it.”

A book fiend right to the end.

Safety of distance

Sunday Blog 20 – 16th Jan 2022

June 1999 leaving Perth to live happily ever after with my daughter’s father in Greece. Spoiler alert, happily ever after was done and dusted in eight months.

Recently I had lunch with my friend Trish, we hadn’t seen each other for some time. “Bring photos,” she said. I did and anticipated a joyous romp through old memories. After all, this is someone I have known since the 1980s.

Over lunch, we puddled through the photos, zigging and zagging back and forward across the decades and on occasions trying to remember who on earth the people were in the images. And yes, there was more than one 1980s photo of us dancing on tables.

Trish was the person I was able to seek refuge with when in 1999 at age 34 I found myself unexpectedly pregnant. To a rather Tall Greek Man I had met during my second academic year teaching in Greece. She welcomed me back to Perth where I hadn’t lived for more than a decade. I was five months pregnant and moved into her beautiful Guildford home. This is a suburb with old-world charm that felt a little reminiscent of Europe and helped me somewhat with the discombobulating period of transition. I had an uneventful pregnancy (well from a health perspective, anyway!) and birthed my daughter at a local hospital. I brought my daughter back home to Guildford when she was not six hours old. I stayed in Perth for seven months, the Tall Greek Man came for a visit and I planned to go back and join him, after attending a sister’s wedding.

I don’t recall ever seeing this photo that turned up over lunch. Trish had come along to farewell me at the airport and had taken this snap. There were other photos taken that day that show us with big smiles – one of me and my daughter is still on my mother’s mantelpiece. But this photo tells the truth of the horror of the moment of parting. This is how I really felt about an indeterminate long-term parting from my mother and family. I spoiled lunch a little by having a little weep when I stumbled across it. It’s taken a week to be able to look at it without crying.

Twenty-two years later we live in a world where international travel is still a very risky pursuit. Many people have been separated from loved ones for some or all of the last two years. I feel ridiculously grateful that I have my loved ones close at hand. With the safety of distance, I know that the pain of this indeterminate separation will turn out to be just 8 months. That my daughter would be raised here, that we built two decades of memories together.

Creativity – crushing joy or glorious mystery?

Sunday Blog 19 – 9 Jan 2022

So the first week back in the real world has come and gone, and the new 2022 diary I settled on in the absence of a Desire Map (see last week’s blog) has seen me soar to new habit heights in things such as flossing my teeth. I got 100% for that. Go me. But the key habit of all, writing? 3/7 days. Ba bow. I am beginning to have that week 2 of the year realisation that the personality revolution my 2022 journal promised still hasn’t happened.

Maybe because I didn’t listen to James Clear’s advice the way my blog indicated I had. Write two minutes a day? I had set myself the herculean task of writing five new scenes for my novel and while I wrote one I am quite happy with, it doesn’t now seem to work that well with the 32 others I already have. Nor does it fit with the high-level plan I created for version number who can say.

Lord knows I try to be a plotter – someone who has the discipline to plan out all my scenes prior to writing. But I am always and ever a pantser – someone who flies by the seat of their pants. Paddling around writing and editing scenes in an unholy mess that reminds me a bit of what my mother calls “rumbling” through her belongings. She sorts and piles and re-sorts until it is pretty much the same, but less organised somehow. A crushing chore.

Sigh. There’s always next week to get back to it and hope for a bit of glorious mystery!

2022 Resolutions…

Sunday Blog 18 – 2 Jan 2022

My Desire Map Journals from 2016-2021

For the last six years, I have used a Desire Map – an actual paper journal. The work of Danielle La Porte, the Desire Map methodology encouraged me to think about how I would feel once I achieved my goals. Sort of a feminine way of setting goals – turning them on their head by focusing on how they would make me feel once achieved. It also encouraged me to bring that feeling more into every day. It helped me stay in touch with both work commitments as well as my dreams for creativity, my home, loved ones, community. Pictured is my set of journals from 2016-2021.

In 2021 I was given the bombshell news by Ms La Porte that Desire Maps would no longer be produced. And just like that, the methodology just didn’t seem to work for me anymore. The weekly reflections I have long praised felt like an endless chore. It petered out in June. There was a brief reprise in October, but the die was cast. It made looking back on 2021 a little difficult – there were only snatches:

-A February trip to the seaside town of Busselton in the glorious warm of February in Western Australia (WA), when everyone has gone back to school and work. I am walking along the beach, darling husband is off for a long cycle. Our paths cross unexpectedly and he calls out to me, raises his arm in greeting in a way that lifts my heart.

-An almost perfect late March/April trip to Albany in the South of WA, staying in a cute cabin, my biggest issue that I haven’t bought enough warm things with me. It is usually so cold but every day was swimming weather.

-An April entry straight after letting me know the week of work washed away the break in no time.

-In September I am trying out other journals, knowing I need to find a Desire Map alternative. I am briefly excited about a journal that I think has caused a personality revolution and had helped me stop doing too much, but that was just a false alarm. Plus it was A4 and I just can’t be dealing with that.

-February and September entries both assure me that I probably need to leave my job to break the hypnosis of the overwhelm. Luckily, I eventually listened.

Cast adrift from Desire Mapping, I have become more and more enamoured of the work of James Clear on forgetting all about goals and thinking more about the habits you need to create to achieve those goals. As his quote highlights, we don’t rise to the level of our goals, we fall to the level of our systems. In his book Atomic Habits he advises “Don’t plan to run a marathon”, (I wasn’t, ever) “plan to be a runner.” Once the marathon is done the motivation to run disappears, but being a runner is forever (except in my case when it’s a not ever to the running thing.)

“Don’t plan to write a book”, (I am), “plan to be a writer”. Now he’s talking. He suggests you make the goal so small it can easily be achieved. Write for two minutes a day. And once the habit is there, you can expand it and develop it.

So here’s to binning New Years’ Resolutions and building good habits instead!

69%

Sunday Blog 17, 26 December 2021

Gottman Sound Relationship House

‘Tis the season for being in close contact with family and/or chosen family and perhaps conflict is something that is top of your mind.

It’s on the top of mine, as I have been attending an 8-week Relationships Australia course entitled Building Better Relationships with my beloved. Much of it is based on the work of John Gottman et al, the researchers who observed thousands of couples. They were able to determine, with 94% of accuracy, which couples will have a healthy relationship versus those who will split or stay unhappily partnered. The marker they identified was the “Four Horses of the Apocalypse” aka negative communication patterns of criticism, contempt, defensiveness, and stonewalling. When these become embedded, the relationship suffers.

69% was a figure I could not get out of my head during this course. It is the percentage of conflicts in an intimate relationship that are not solvable. They literally cannot be solved (because opposites attract, right?) and can only be managed. It normalised the reality that staying partnered can be hard, and bringing attention to how we communicate with each other is a game-changer.

It took five of the eight weeks of the course before we were allowed to get onto conflict, as we needed to build up the positive habits of truly getting to know your partner, sharing fondness and admiration, responding when your partner makes a bid for your attention, support or comfort. Then there’s giving your partner the benefit of the doubt, not rushing to be offended or criticise.

Then you can start tackling conflict. There is 31% of solvable conflict you can start nibbling around the edges. Then you begin to tackle the unsolvable ones, like differing levels of tidiness, ways of handling money. You bite off this big chunk by exploring what is underneath your partner’s attitude e.g. towards money. Then it can transform your conversations, but the differences will remain.

I even have a lovely shade sail out the back, shifting a previously gridlocked conversation between my darling partner and me. By completing our week 5 homework we moved right through to the other side.

Anyhoo, this 8-week course is literally the best $180 I have ever spent.

Merry Christmas!

Transition versus change

Sunday Blog 16, 19 December 2021

Peering at me through the screen was my counsellor who lives some 400 kilometres away. Thanks to the wonder of modern science she is available to support me. I called on her to pick up the pieces after my experience, detailed last week, when a 2018 journal entry sucker-punched me into understanding that it was time to leave my job. Begin to untangle the threads of what is me and what is my day job.

Seven years ago I took on the role of Executive Director at the Health Consumers’ Council in Western Australia. Almost immediately I began thinking about how long was the right time to have a role like that. Five to seven years was a common marker I referred to. As this metaphorical deadline approached, the internal whisper for change had become a roar.

“Have you heard of William Bridges Transitions?my counsellor asked. I hadn’t. I ordered it immediately and like a miracle, the hard copy arrived the next day. Drowning in the waves of turmoil, I had already downloaded the kindle and audible version just to be sure. I was clinging to this liferaft, still at the stage of wondering whether I just needed a lot of day naps or whether my time was really truly up. His book was a lighthouse that illuminated that the stuckness I was feeling is a key sign that transition is in the wings.

“Every transition begins with an ending,” Bridges told me. He encouraged me to think back on transitions in my life, and how I have handled endings. It’s fair to say that hurtling headlong into the next adventure and failing to understand the importance of a transition would sum up my approach.

This time I am protected by the reality that you can’t walk away from a leadership role like this in five minutes, or even a month. I have a plan. I am transitioning into the Acting Deputy Director role in the second week of January, and then off the permanent payroll by 31st March. After then I will likely contract back to the organisation, tackling the many fee-for-service projects we are constantly approached about. Between and now there will be loss, sadness, joy, excitement often in the same hour. I’ll consciously begin with the ending. I’ll sit with the messy middle of the transition and the (consciously, slowly) allow the next stage to unfold. Unless of course something really bright and shiny comes along and I revert to type and hightail after it!